It is no secret that dementia is a topic that is near and dear to me. Throughout my experience of navigating my dad John's journey with behavioral variant frontotemporal degeneration and ALS, and my grandma Jackie's progression with Alzheimer’s, I've leaned on A LOT of helpful resources for dementia education and support.
In preparation for the upcoming Forget Me Not Dementia Care & Resources panel at the Altadena Library May 23rd, I'm sharing some of my favorite spaces online for actionable advice, community, and on-going education on these topics. This is a living document, and one I will continue to add to over time - you may access this document HERE.
From my training as a hospice volunteer, an assisted living employee and seated exercise instructor, and my experience as a grief educator and End-of-Life doula, I've discovered so many helpful people and approaches for living with and caregiving for folks with dementia. You are not alone.
Please reach out with any questions and/or suggestions for resources to add to this list. Together, we can harness the transformative power of grief for good!